Monday, April 28, 2008

No More Sick Posts!





Random Pictures of the week - the little girl in the hat is my neice, Reagan.




This is not a medical update! It's a we had a normal kid week update. Michaela has enjoyed a week full of normal temperatures, so we played outside, inside and all over! She has taken a very unusual interest in the texture of things, and assumes we also feel her interest. She will spend literally an hour on one book feeling the different things and then come and get either Jordan or I and share her discoveries with us - so cute! Not a lot else to report here, just a busy normal week. We do have som epretty big life changes coming up, deciding on a graduate school or a work promotion for Jordan. We'll let you know what end of the earth (seriously) we will be posting from this summer!





Thursday, April 24, 2008

Home!!!

Okay, the whole story.......:
Friday night Jordan and I woke up to Michaela having another seizure.... it was a really short one minute thing, but we still called the ambulance and had her taken to Childrens Hospital ER, (a 30 mile ride....) They released us with a healthy kid with a fever at about four in the morning. So all day Saturday we did the Motrin and Tylenol thing and at about one thirty, she had another little one. Done messing around, we went back to the ER but refused to leave without being admitted. The reason for this is there is a 6-9 month wait for pediatric neurologists for out patient appointments and I wasn't about to wait that long to see if my baby has a seizure disorder. Anyway, we slept there on Saturday night, SUnday she had six three second seizures in front of the nurse, all fever related. Sunday afternoon, the neurologist evaluated her, orderd an MRI Brain Scan and then the Rumatology (joint) people looked at her and ordered a billion blood tests and a heart ultra sound, then the INfectious diesease team ordered another billion blood tests. Monday we got to watch them put our one year old completley under anastesia, (sp) which to tell you the truth was the hardest part for me because I had to hold her while they gave her the medicine in her IV. One minute she was crying and then literally three seconds later, she was gone. I bawled, the nurse escorted us out and 45 minutes later, she was done with the brain scan and chest scan. Those came back normal. Frusterating not to find something, but they were looking for tumors, holes in her heart and really scary things like that, so we were relieved to find nothing with these tests! On Tuesday she had an Echocardiogram, basicaly an ultrasound of her heart. This was to make sure she had all four chambers and that the anatomy was good. Also looking for small pockets of infection. Came back normal. Again good, but frusterating. Anyway, the blood tests came back good also, they were looking for any kind of bacteria infection or viral infection, thyroid problems and weird things like that. The quick ones came back just fine, and on Wednesday her fever broke again so we went home. We are comfortable though because we have seen the entire inside of this kid! They are thinking that (test is pending) she has something called a fever disorder. A small percentage of the population have this, its not life threatening or contagious or life altering. She is a normal girl who will grow normally and get to do things as if she didn't have it. She will get fevers often and her body happens to react with febrile seizures but those aren't damaging either. It's some kids bodies natural reaction. She won't have brain damage, delay in her growth or have a seizure diorder later in life, unless she already has one that hasn't appeared yet. If that is the case, the two types of seizures won't be linked. So that's that. Michaela is healthy, just a little dramatic with the fevers and we love her so much, we are so grateful for the hospital, the insurance and our Heavenly Father for all that we have. It makes you look at things a little differently when you see your baby in the hospital. Like why spend 15 min doing email while I could be snuggling with her or playing with her. Gives you back that eternal perspective that sometimes its hard to hold onto. Anyway, things here are good. We were, are, and might continue to be shaken up a bit, but we'll all heal. Thanks for the concern.
-Samantha

Tuesday, April 22, 2008

Quick Update.....

Michaela is still here at Children's Hospital, will be for at least another day. Nothing solid figured out just yet but still workin on it! Thanks for the prayers!
-Samantha

Friday, April 18, 2008

What a Pout!


I think Michaela's pout is so cute.... I thought I would share! This is the reaction we got when we asked her to share a toy with her cousin Reagan, not so good!

Thursday, April 17, 2008

My mom sent me this story this morning and I wanted to share......

The Invisible Mom

It all began to make sense, the blank stares, the lack of response, the
way one of the kids will walk into the room while I'm on the phone and
ask to be taken to the store. Inside I'm thinking, 'Can't you see I'm on the
phone?'

Obviously not; no one can see if I'm on the phone, or cooking, or
sweeping the floor, or even standing on my head in the corner, because no one can
see me at all. I'm invisible. "The invisible Mom."

Some days I am only a pair of hands, nothing more: Can you fix this?
Can you tie this? Can you open this?

Some days I'm not a pair of hands; I'm not even a human being.
I'm a clock to ask, 'What time is it?'
I'm a TV Guide guide to answer, 'What number is the Disney Channel?'
I'm a car to order, 'Pick me up right around 5:30, please.'

I was certain that these were the hands that once held books and the
eyes that studied history and the mind that graduated summa cum laude - but
now they had disappeared into the peanut butter, never to be seen again.
She's going, she's going, she's gone!

One night, a group of us were having dinner, celebrating the return of a
friend from England. Janice had just gotten back from a fabulous trip,
and she was going on and on about the hotel she stayed in. I was sitting
there, looking around at the others all put together so well. It was
hard not to compare and feel sorry for myself. I was feeling pretty pathetic,
when Janice turned to me with a beautifully wrapped package, and said,
'I brought you this.'

It was a book on the great cathedrals of Europe. I wasn't exactly sure
why she'd given it to me until I read her inscription:
'To Charlotte, with admiration for the greatness of what you are
building when no one sees.'

In the days ahead I would read - no, devour - the book. And I would
discover what would become for me, four life-changing truths, after which I could
pattern my work: No one can say who built the great cathedrals -
we have no record of their names. These builders gave their whole lives
for a work they would never see finished. They made great sacrifices and
expected no credit.

The passion of their building was fuelled by their faith that the eyes
of God saw everything.

A legendary story in the book told of a rich man who came to visit the
cathedral while it was being built, and he saw a workman carving a tiny
bird on the inside of a beam. He was puzzled and asked the man,
'Why are you spending so much time carving that bird into a beam that
will be covered by the roof? No one will ever see it.' And the workman
replied, 'Because God sees everything.'

I closed the book, feeling the missing piece fall into place. It was
almost as if I heard God whispering to me, 'I see you, Charlotte. I see the
sacrifices you make every day, even when no one around you does. No act of
kindness you've done, no sequin you've sewn on, no cupcake you've baked,
is too small for me to notice and smile over. You are building a great
cathedral, but you can't see right now what it will become.'

At times, my invisibility feels like an affliction. But it is not a
disease that is erasing my life. It is the cure for the disease of my own
self-centeredness.
It is the antidote to my strong, stubborn pride.

I keep the right perspective when I see myself as a great builder. As
one of the people who show up at a job that they will never see finished, to
work on something that their name will never be on. The writer of the book
went so far as to say that no cathedrals could ever be built in our lifetime
because there are so few people willing to sacrifice to that degree.

When I really think about it, I don't want my daughter to tell the friend
she's bringing home from college for Thanksgiving, 'My Mom gets up at 4 in the morning
and bakes homemade pies, and then she hand bastes a turkey for three
hours and presses all the linens for the table.' That would mean I'd
built a shrine or a monument to myself. I just want him to want to come home.
And then, if there is anything more to say to his friend, to add,
'You're gonna love it there.'

As mothers, we are building great cathedrals. We cannot be seen if we're
doing it right. And one day, it is very possible that the world will
marvel, not only at what we have built, but at the beauty that has been added to
the world by the sacrifices of invisible women.

Sunday, April 13, 2008

Happy Saturday!








Yesterday it was BEAUTIFUL outside! Like 75 degrees and clear. So I cancelled my massage appointment, and Jordan, Michaela, Shawnie and I headed out on a road trip. The GPS led us to a small park in Ellensburg WA where Michaela played at a park for the first time. (is that weird it's taken me so long to take her to a park?) Then we were almost home and wanted dessert so we called Jordan's Aunt and Uncle to see if they wanted to meet us somewhere but they were having his daughter and her new fiance for dinner, but invited us to come over there! It was so much fun! Jordan got to go out on the wave runner (They live ON the lake) and Michaela played with their little boy Cameron. It was so funny to see her playing like a big girl, running around and squealing with him. I had a great time too, Stephanie always makes such good food, I always leave there with new dinner ideas! Anyway, some of the other pictures are of earlier in the week, but my mom needed a baby fix, so I put extra on here this time! On a different note, Michaela met with the specialist at Childresn's Hospital where we had her tested for EVERYTHING. Turns out she is fine. Just a string of viruses, and apparently it isn't uncommon for babies to be sick all winter long....This is my fourth opinion so I will rest easy for now! Thanks for the prayers and concern!




























Friday, April 4, 2008

Feeling Better!






So as some of you suggested, I was already in the process of finding a different doctor! We got into see a specialist affiliated with Seattle Children's Hospital on Wednesday and have already had numerous labs done. Things are going well and so far, nothing too serious is coming back. I will keep you informed and keep Michaela in your prayers! In the meantime, we are having a blast with new backpacks, markers and discovering mommy's socks!



Tuesday, April 1, 2008

The Saga Continues.....

Okay, so yesterday was the worst day of my life. I am certian I can say that. It begins with an entire three months of Michaela's urinary tract infections and hospitalizations, (I don't know if I posted when she was admitted again, ON HER BIRTHDAY.) and a "virus" that she has had for about six weeks now. I take her to the doctor at least once a week, sure there is something more than a virus and she can have medicine for it, but everytime I am sent home with tylenol and motrin. Anyway, yesterday she felt a little warm when I put her down for a nap but she was sleeping so I didn't wake her for tylenol. About 45 min into the nap, I heard a yelp and thought someone stepped on a puppy outside or something. After dismissing the noise, my body got chills and my mom internal voice (also known as the spirit) told me to check on Michaela. So I go in there to see my poor little baby having a seizure. Her eyes were wide open and rolled into the back of her head and she was shaking like a fish out of water..... So I pick her up, attempt to call 911, but I don't have service downstairs so I carry Michaela upstairs while she is still seizing, use the landline and scream to the operator that my one year old is and has been seizing for at least two minutes. I could hardly get my address out, and couldn't think of my house number, and this whole time Michaela is still shaking and at this point her lips are turning blue and she's going limp. I gave her rescue breaths and ran out to the lobby to meet the paramedics, the whole time my baby is limp in my arms and still shaking. Three or four minutes have gone by...... I gave her some more breaths, she finially stops seizing and now I am sitting on the bench in the lobby. So now Michaela is slowly starting to come out of it, still jerky and vacant looking but breathing and looking less blue, I realize I hung up on 911 when I carried the landline to the lobby and my cell phone didn't get service where I was sitting (side note.... switch to a useful cell phone company?) so I jumped on this poor man waling inside, I said in a urgent tone, Sir I need your phone, my baby is sick and I need to call my husband. Dude looks at me for a moment so I say, I NEED THE PHONE PLEASE. Jordan gets three words, Michaela is having a seizure, and I hang up on him. The manager comes out and asks whats going on. I realize I am about to get into an ambulance and I don't have any shoes on so I scream at her, I need my shoes! So she gets them, the paramedics come, Jordan gets there,we ride in the ambulance, go to the ER, Michaela had a Febrile Seizure which happens when a temperature spikes or drops suddenly. They say there are never side effects and they actually aren't emergencies and I don't even have to call 911 if it happens again. RIGHT. I will be calling. Anyway, she is fine, her temp is being regulated by Motrin and Tylenol, it's 98.8 now which is low normal, and we are ALL recovering. I actually want to publically thank Morgan Killian for educating me about a month ago when this happened to her daughter because I knew instantly what was going on and freaked out less than I would have otherwise....so THANKS MORGAN! Anyway, someday the health scares will cease, and I will be less paranoid. I actually didn't sleep last night, I watched Michaela like a movie, stuck a thermometer in her poor bum every two hours and the poor girl is terrified of a diaper change now. Life is returning to normal, and MAYBE tomorrow night I will go to sleep, not tonight though! Thanks for the prayers and calls, they were needed, felt and appreciated.